1 in 88 Children: A Look Into the Federal Response to Rising Rates of Autism

Hearing Date: November 29, 2012 12:00 am

2:00 P.M. in 2154 Rayburn House Office Building

Chairman Issa Hearing Preview Statement

OGR Full Committee Hearing:  “1 in 88 Children:  A Look into the Federal Response to the Rising Rates of Autism”

November 29, 2012

Congress spends a lot of time discussing and debating issues that are determined by our own philosophical belief on what the role of government should be. Today we are drawing attention to something that has no political affiliation, no partisan allegiance, something much more fundamental and something much more personal.

Right now, 1 in 88 children are identified with Autism Spectrum Disorder or ASD. At the start of this century, that ratio was 1 in 150. The truth is we don’t know enough about ASD.  We do know, however, that it is being diagnosed far more frequently than it was just a few years ago.

In recognition of this increase and of the reality that we don’t know enough about ASD, the Congress passed the Combating Autism Act in 2006 to establish the Interagency Autism Coordinating Committee so we could facilitate an exchange of information and coordination in the hopes of raising awareness and understanding of ASD research and services. In Fiscal Year 2012, Congress directed $230 million for ASD-specific research and services.

Today, we will get a clearer picture on what is being done, what questions still need to be answered and what needs exist for those children, adults and families who live with an Autism Spectrum Disorder.


Witnesses and testimonies

Name Title Organization Panel Document
Alan Guttmacher, M.D. Director, Eunice Kennedy Shriver National Institute of Child Health and Human Development National Institutes of Health Document
Coleen Boyle, Ph.D. Director of the National Center on Birth Defects and Developmental Disabilities Centers for Disease Control and Prevention Document
Mr. Bob Wright Co-Founder Autism Speaks Document
Mr. Scott Badesch President Autism Society Document
Mr. Mark Blaxill Board Member SafeMinds Document
Mr. Bradley McGarry Coordinator of the Asperger Initiative at Mercyhurst Mercyhurst University Document
Mr. Michael John Carley Executive Director Global & Regional Asperger Syndrome Partnership Document
Mr. Ari Ne'eman President Autistic Self Advocacy Network Document